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two thousand thirteen…
You may remember that my last post, Spaceman’s Disease, was the first of a two part series on the biology, difficulty (and necessity, perhaps) of exercising with a chronic illness. This actually is not...
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exercise (in)tolerant…
After my last two posts, you are no doubt now very familiar with my exercise plight. In this post I will finally share my formulated plan to address my exercise intolerance, and perhaps begin to...
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the joys of being a woman…
To my gentlemen readers (do I even have any?…), I promise I won’t be offended if you want to skip this post. When I was little, I always thought a gynecologist was a nose doctor. I think I got the...
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another day, another medication…
Last week I had an appointment with my POTS doctor. Many dysautonomiacs see a neurologist for help managing their condition, as dysautonomia is a dysfunction of the autonomic nervous system. However,...
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POTS 101 – Reblog
My fellow POTS blogger over at lethargicsmiles provides a great description of POTS, what it is, and what it would feel like if you had it. With her permission, I’m sharing Jackie’s page, POTS 101,...
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brain fair…
Welcome to the Brain Fair! Last Saturday, March 16th, was the American Academy of Neurology Annual Conference and Brain Fair. This year it was located here in southern California, so I volunteered to...
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the medication dilemma…
About a week ago, I stopped taking all my dysautonomia/ME/CFS medication. I don’t exactly know why. One night before bed it was time to pop the pills, and I just decided I didn’t want to. And the next...
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emergency response…
Note: I started writing this post before the bombing in Boston on Monday, but debated whether to continue with the post in light of the tragedy. The “emergency” I discuss in the post doesn’t compare to...
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the symptom-cost scrutiny..
For the past few days I have been pretty dehydrated. From what I understand, dysautonomia and ME/CFS can cause problems with water retention, and we can excrete too much water. I’ve noticed that, since...
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Applying for Social Security Disability Benefits with Dysautonomia
*** Update: For dysautonomiacs who are filing for disability, my friend Stacy (see comments) has kindly offered the diagnostic code for dysautonomia: 337.9 (confirm this with your attorney). Hello...
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chronic voyage…
I love traveling. I mean, I LOVE traveling. Ever since I was 15 and ordered my first Guinness beer from a bar in Ireland (and by “beer”, I mean water, mom and dad), I have been hooked. I traveled to...
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the road is life: tips for traveling with a chronic illness…
As you may remember, in my last post, chronic voyage, I discussed my recent unsatisfactory trip to the desert. Traveling can be taxing for even the healthiest of individuals – it is no surprise it can...
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the joys of being a woman, part ii…
Gentlemen, this is another one of those posts you may want to skip. Although, if you choose to continue, I have included some special treats just for you. As you may remember, I posted months ago about...
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belated blogiversary…
I just realized that Musings of a Dysautonomiac celebrated its one year anniversary! June 21st, 2012 I posted my very first post. I started this blog to share my experiences with family and friends,...
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things that are needlessly complicated by illness: the haircut
An entire book could probably be written about simple things that are made much more difficult by dysautonomia and ME/CFS. Some I have mentioned before and are probably pretty obvious: Exercise....
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too much of a good thing: bradycardia…
It’s no secret I don’t like being on medication. I’m still skeptical about the long term effects of putting chemicals in my body. And while I appreciate not having a ridiculously high heart beat, I...
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exercising like a(n elderly) boss…
I’ve been tai chi’ing like a grandma. Wait…..let me back up. photo credit: Calamity Meg via photopin cc As you may remember from a post earlier this year, my goal for 2013 is to find an exercise...
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MCAD, FMS and other random letters…
I had an appointment with my cardiologist yesterday to discuss the bradycardia I had been experiencing. However, it takes about 6 weeks to get an appointment with this doctor, and by the time I was...
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the heat is on…
Holy Heatwave, Batman! We have been having an unprecedented heatwave here in southern California. Certainly this time of year, temperatures are expected to rise – that’s no surprise. In fact, I don’t...
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invisible illness week 2013
This week is National Invisible Chronic Illness Awareness Week! In observance, invisibleillnessweek.com offers some great articles and podcasts for those with chronic illnesses and their caregivers. I...
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