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administrative updates…

Hi friends, I’d like to tell you that the title for this post is some deep metaphor for the wisdom I’m about to bestow, but it’s actually very literal. I made some updates to this blog, and they were...

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stop comparing every illness to cancer…

I expect this post will be wildly unpopular, but I am going to say it anyway. Stop comparing every illness to cancer. The day I received my chronic illness diagnosis still ranks among the worst days of...

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happy POTSiversary to me…

I’m going to tell you a story about the woman in this photo.     This was taken a little over six years ago. She woke up after a restless sleep, like every other night that year. After donning some...

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hair loss and chronic illness…

I’d love to tell you that before developing postural orthostatic tachycardia syndrome (POTS) and mast cell activation disorder (MCAD), I had silky, lustrous locks. But that would be a lie. I have...

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the finality of the fiasco…

Oh my God, you guys. Guess what was waiting for me when I arrived home on Thursday??   Cromolyn sodium oral concentrate! FIVE boxes of cromolyn sodium oral concentrate! 11.2 POUNDS of cromolyn sodium...

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POTS mini conference…

Great news! If any of you are located near southern California, I highly recommend you check this out! CHOC (Children's Hospital of Orange County) is offering a great POTS conference on December 3-4,...

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further down the rabbit hole…

It has been an interesting few weeks - the Cubs finally won the World Series, Donald Trump will be President, marijuana is now legal in California, and I have two "new diagnoses", although I use those...

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(wo)man’s best friend…

One year ago today, my life changed. This handsome fella came into my life: Today is Fletcher's one year adoption anniversary. I first came across his adorable face when searching a local dog shelter's...

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conference recap…

I was really hoping to get this out to you all before the end of 2016, but I'm 23 hours late. I hope you'll all forgive me. [P.S. HAPPY NEW YEAR!] As you may remember, I attended the Connecting the...

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conference videos…

Hi friends! In my previous post about the POTS/MCAD/EDS conference I went to in December, I promised I would let you know as soon as the recordings of the speakers were available. The videos are now...

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